Resources and information for parents of children with cancer . . . by parents of children with cancer.

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Treatment: CAM Web sites

The listing of a site on this page does not mean that the site offers acceptable alternative therapies. I have no personal experience with any of the listed people or any of the therapies they endorse. I am listing them as a convenient source for parents who want to research alternative therapies.

Also see the sites associated with prominent names in alternative cancer therapies on the ped-onc CAM people page:

Some of the sites/agencies listed below are discussed adversely on Quack Watch, so beware.

NCCAM

The NIH established the National Council for Complementary and Alternative Medicine, NCCAM, in 1999; from 1992-1998, the NCCAM was called Office of Alternative Medicine (OAM). Read the purpose of NCCAM on their web site. In 2001, the NCCAM teamed with the National Library of Medicine to launch CAM on PubMed: CAM on PubMed contains bibliographic citations (1966-present) related to complementary and alternative medicine.

Cancer.gov

This links directly to CancerNet's section on CAM. Besides an overview, they present detailed information on specific topics. The fact sheets on each therapy are the same as those linked to from the NCCAM site.

The National Foundation for Alternative Medicine (NFAM)

"The National Foundation for Alternative Medicine (NFAM) was created to scientifically study, validate, and publicize information about alternative and complementary treatments and to make the findings available to the public free of charge. Most of NFAM’s research to date has been in cancer treatment. NFAM is an educational and research organization that compiles data on medical treatments. NFAM does not make referrals, nor does it recommend any healthcare practitioner, clinic or treatment."

NFAM promotes research into alternative therapies. The site evaluates, gives contact information, and summarizes the therapies of many CAM clinics in the world. It also has a glossary of many types of therapies. Drs. Weil and Chopra are on the scientific advisory board. In general, the site has a lot of information and is a worthwhile site to visit if you are interested in alternative therapies.

Cancer Centers of America and Memorial Sloan Kettering

These institutions incorporate concepts of complementary and alternative medicine into their programs. Direct link to About Herbs, Botanicals, and Other Products on the MSKKC site (11/2014).

The Carol Anne Schwartz Cancer Initiative

The Carol Anne Schwartz Cancer Initiative is at the Rosenthal Center for CAM (see below). This program was founded by the family of Carol Anne Schwartz to make reliable information on complementary cancer therapies readily available to help others with cancer and to be a resource to the healthcare community.

Integrative Therapies Program for Children with Cancer Providing information on pediatric cancer and complementary/alternative therapies. "The goal of the Integrative Therapies Program is to provide guidance to patients, families and physicians regarding the possible benefits of herbs, vitamins, dietary changes, mind-body and other complementary therapies, as well as collecting information, providing services and doing research on how these therapies interact with the chemotherapy, radiation and other conventional treatments that patients receive." (The Integrative Therapies program is located at Columbia University in NY.)

Center for Mind-Body Medicine

Conference Page on Comprehensive Cancer Care. This page lists the Conferences from 1998-2011 (and beyond), with transcripts or summaries of all the talks.

For instance, in the 2000 conference: CAM Therapies in Pediatric Oncology

But don't stop there, there is a wealth of information on this site. Many topics are discussed, from how to determine if an alternative therapy is good to discussions of specific alternative and complementary therapies.

The JLS Foundation

The JLS Foundation discusses alternative and homeopathic therapies from the view point of parents who have been through it. Their daughter had recurring AML and lived a year after the doctors gave her only weeks to live. They list types of therapies and give general advice as to how to judge pediatric alternative therapies, legal, financial, practical concerns, what questions to ask. They ask readers to correspond by email so that they can gather a database of useful treatments. They have not posted the results of any such data collection.

Longwood Herbal Task Force

The LHTF was organized in the fall of 1998 by faculty, staff and students from Children’s Hospital, the Massachusetts College of Pharmacy and Health Sciences and the Dana Farber Cancer Institute to learn more about and teach other clinicians about herbs and dietary supplements. The site has a lot of good information on these therapies.

Commonweal

The web site has a lot of written materials available online. The information is referenced with scientific support.

Annie Appleseed Project

"The Annie Appleseed Project, a 501 (c)3 non profit corporation, provides information, education, advocacy and awareness for people with cancer, family and friends interested in, complementary, alternative medicine (CAM), natural therapies from the patient perspective." (accessed 1/05) Looks like a lot of information on this site.

Just in case you missed them on the main ped-onc CAM page:

General Disclaimer

These pages are intended for informational purposes only and are not intended to render medical advice. The information provided on Ped Onc Resource Center should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care. If you suspect your child has a health problem, you should consult your health care provider.

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