Resources and information for parents of children with cancer . . . by parents of children with cancer.

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BMT Resources

Books

Pediatric Hematopoietic Stem Cell Transplantation

Edited by Ronald M. Kline. 640 pp., illustrated. New York, Informa Healthcare, 2006. $229.95. ISBN 978-0-8247-2445-0. Reviewed in the June 14, 2007 issue of the NEJM.

Web Sites, organized by site

Blood & Marrow Transplant Information Network (BMT InfoNet)

www.bmtinfonet.org/
phone: 1-888-597-7674

An excellent resource. What the site has to offer:

Newsletters. A quarterly newsletter for bone marrow, peripheral blood stem cell and cord blood transplant patients and survivors.

Helpful Services, such as:

Transplant Center Search Form: Directory of transplant centers in the US and Canada.

Drug Database: Lists many of the drugs used in transplants - why they are used and some possible side effects.

National Cancer Institute

Blood Stem Cell Transplants on the cancer.gov website.

A slide show on blood stem cell transplants. Educational, posted on the cancer.gov site (accessed 2011).

National Marrow Donor Program (NMDP)

website: www.marrow.org/
1-800-MARROW2 (1-800-627-7692)

Great information and helps on finding a matching donor. Has a section on childhood BMTs. This site (and the organization via media) also encourages people to join the registry as potential donors, and tells people exactly how they can join the registry and how the costs in so doing can be defrayed. It also has general information on transplantation, and links to the bmtinfo site for more detailed information.

What the site has to offer:

The Bone Marrow Foundation (BMF)

website: www.bonemarrow.org/
phone: 1-800-365-1336

The BMF raises awareness of the need for bone marrow donors. It also helps patients who need transplants by providing financial aid, a resource directory, a literature search page, and support line and an ask the expert page.

International Bone Marrow and Cord Blood Search: Caitlin Raymond International Registry

University of Massachusetts Medical Center
website: www.crir.org
Phone: 800-726-2824

A comprehensive resource for patients and physicians conducting a search for unrelated bone marrow or cord blood donor. This organization helps find donors; the website does not have a lot of technical information, although it has a good page of links to sites that do.

Parent's Guide to Choosing a Cord Blood Bank

www.parentsguidecordblood.com

Original content; a non-profit.

National Bone Marrow Transplant Link (NBMTLink)

website: www.nbmtlink.org
phone: 1-800-LINK-BMT

"What to expect and how to get though it" is an account on the website written by a patient. Although not ped-specific, this site is a very good source of information. Emotional as well as medical aspects are covered. You can order books, a Survivor's Guide and a resource book for BMTs, from the site. Resources for patients are also listed.

University of Minnesota

bmt.umn.edu

Complete questions and answers, from medical to psychosocial, in the FAQs. Excellent and informative site.

The JLS Foundation

website: www.jlsfoundation.org/

This informative site is written by the parents of a child who had a BMT. The links below take you directly to the BMT section and the quite excellent reference section.

Viacord

website: www.viacord.com

ViaCord is a cord blood banking service, and provides free cord blood storage for five years for expecting parents who have a child that needs a transplant. The website offers general information on cord blood transplants, patient stories, information on emerging research, and research collaborations.

Granny Barb and Art's Leukemia Links

website: www.acor.org/leukemia/

Great links, excellent and organized well. This site has links to journal articles as well as other types of web resources.

Information listed by topic

Cord Blood

Technical information on transplants

HLA typing

Bone marrow registries

(Where to find them and how they work.)

Cord Blood Transplants

Resources: Financial and Psychological

Choosing a BMT Center

General Disclaimer

These pages are intended for informational purposes only and are not intended to render medical advice. The information provided on Ped Onc Resource Center should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care. If you suspect your child has a health problem, you should consult your health care provider.

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