Resources and information for parents of children with cancer . . . by parents of children with cancer.

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A

adolescent cancer care issues (treatment at pediatric/adult centers, clinical trials)

airline flights (resources)

ALCL, anaplastic large cell lymphoblastic leukemia

ALL, acute lymphoblastic leukemia (ALL section)

ALL-kids mailing list (mail list page or direct)

ALL-kids-relapsed mailing list (mail list page or direct)

alternative therapies

ametop (local anaesthetic)

ANC (blood counts page)

angeling organizations (family issues, miscellaneous links area)

anthracyclines

anti-bacterial mouth rinses

anti-fungal mouth rinses

anti-nausea drugs

antibiotics, preventative or prophylactic

antieptilectics in the treatment of ALL

ara C, or cytarabine

ASCO abstracts

asparaginase

astrocytoma

avn, or avascular necrosis

awareness (of childhood cancer, raising)

B

back-to-school issues (also see education, below)

Bactrim

baskets (items to put in baskets for parents in hospitals)

bears for kids on treatment (family issues, miscellaneous links area)

bereavement

bibliographies (lists of pertinent journal articles)

blankets for cancer kids (family issues, miscellaneous links area)

blood cells/counts

BMA and BMB

BMT, bone marrow transplants

body surface area (in drug dosing, includes a link to calculator)

bone cancers

bone marrow aspiration

bone marrow biopsy

bone marrow transplants (see BMT)

bone scans

books (on childhood cancer issues)

brain cancers

BSA (see body surface area)

butt paste

C

CAM (please see complementary and alternative listing, below, for details)

cancer kid camps

cancer kid web pages, personal, grand listing

cancer.gov childhood cancer link

Candlelighters Newsletters: My Table of Contents

candles (family issues, miscellaneous links area)

cardiology tests (late effects to the heart)

cardiotoxicity (late effects)

causes of childhood cancers

causes of leukemia

CBC, complete blood count - defined

central lines

charities: how to determine if they are valid

chemo angels (family issues, miscellaneous links area)

chemotherapy

chicken pox during treatment

chicken pox letter

childhood cancer awareness

childhood cancer camps

childhood cancer ombudsman service

childhood cancer support organizations

Childrens Oncology Group Patient Advocate Committee

clinical trials

clonal disease in ALL

COG-PAC

cognitive late effects: information and IEPs

college scholarships for survivors (and siblings)

compassionate use of drugs

complementary and alternative therapies

computer programs about cancer (for kids)

coping (parents, when your child has cancer)

cord blood storage (free sibling, Oakland Childrens)

cover ups for central lines (family issues, miscellaneous links area)

craniopharyngioma

CT (complementary therapy)

CT scans

Cure of Childhood Leukemia, book and web site

cytarabine

cytogenetics (ALL)

cytoxin

D

dapsone

daunorubicin

dental care

dexamethasone

dexrazoxane (Zinecard®)

diagnostic scans

dictionaries

do's and don't's (how to help friends who have kids with cancer)

doxorubicin

drug dosing (BSA links)

drug reimbursement

E

e-mail support lists

eating problems

education

electromagnetic fields and childhood cancer (including leukemia)

EMLA

emoticons and slang (also on family rules)

emotional support

environment

ependymoma

Ewing's sarcoma

F

Family Medical Leave Act (FMLA) - see the articles in the Candlelighters quarterly journals

feeding kids on steroids

fertility issues: on-treatment and survivorship fertility issues

fever

financial aid

flow cytometry (explained, in MRD testing, and links to more info)

food issues

freezy spray

full clinical trial document (parents right to have)

fundraising

fungal infections

G

gallium scans

games - online - for cancer kids

gene expression profiling (ALL)

general cancer books

genetic terms, defined: both in the glossaries section on the translocations page

gift baskets for parents (what to include)

gliomas

glossaries

gold ribbon pins

government agencies (helpful to parents of kids with cancer)

grief (see bereavement)

GVHD

H

hair loss

hats and wigs

Hodgkin's lymphoma

Horses for Hope (wish granting, also sort of like "camp")

hugs and hope club

hyper/hypodiploidy (ALL)

I

idarubicin

IEP (Individual Education Plan)

IM, intramuscular (explained)

infections during treatment

informed consent

inspirational poems, etc.

insurance helps

IT, intrathecal (explained)

IV, intravenous (explained)

J

jet fuel jp-8 and leukemia

journal articles (also see "bibliographies")

K

karyotype (ALL)

kidney protectors - sports pads

kidney scans

kids

kids activities to do online

Kimo bears for chemo kids (in the miscellaneous section)

kytril

L

late effects

leucovorin

leukemia (for ALL specifically, see ALL)

leukocyte antigen panels

leukoencephalopathy

liver scans

lodging (while staying at hospitals)

love quilts (to make a child smile; in the miscellaneous section)

LP, lumbar puncture (explained)

lymphomas

M

make a child smile (in the miscellaneous section)

make-a-wish

medi-ports

medical procedures - explained

medulloblastoma

methotrexate

mouth care issues

MRD, minimal residual disease (focus on in ALL)

MRI scans

mucositis

N

NCI facts sheets, list of available

neuroblastoma

neutropenic

neutrophils

newly discovered drugs and new treatments

NHL (non-Hodgkins lymphoma)

numby stuff

O

off-treatment list (ped-onc-survivors)

ombudsman service

omya reservoirs

online support

osteosarcoma

ovarian germ cell tumors

P

PAC, Patients Advocate Committee (COG)

pain control

pamphlets on childhood cancer

PCP

PCR

ped-onc e-mail list (or direct link to subscription page)

ped-onc-survivors e-mail list

pen-pals for kids

pentamidine

pesticides (etc.) and leukemia

pets in the house while on therapy

Philadelphia chromosome

PICC lines

pills

pineal region tumors

pneumocystis pneumonia

PO (taken orally)

port-a-caths

ports

post pals (in the miscellaneous area)

power lines and leukemia

Project Linus (in the miscellaneous area)

protectors

psychological support

public school and childhood cancer

Q

quilt - childhood cancer awareness

quilts for kids (in the miscellaneous area)

R

radiation

randomization in clinical trials

rare childhood cancers

retinoblastoma

rhabdoid tumors (a rare cancer, try the homepages); also, included in an article in the Fall 2003 Candlelighters Newsletter)

rhabdomyosarcoma

right atrial catheters

Ronald McDonald houses

S

Sammie's Tops (in the miscellaneous area)

scans (CT, MRI, nuclear medicine imaging)

scholarships (college, for survivors and siblings)

school letters

second opinions

seeking new treatments (essay by Honna)

SEER link and in stats

segs and bands - defined

septra

SIADH during treatment

siblings

smile quilts (in the miscellaneous area)

songs for cancer kids (in the miscellaneous area)

songs of love (in the miscellaneous area)

sore bottoms

Southern blots (restriction enzymes, in MRD)

spinals - explained

sports pad protection

SQ, subcutaneous - explained

St. Baldrick's Day

standard-of-care

statistics of childhood cancer incidence

stem cell transplants

stomatitis

"Stories and Faces" pages, personal web page grand listing

support groups

support organizations

survivors

swimming with a port (right atrial catheter)

symptoms of childhood cancers

T

talking glossary of genetic terms

Tay bears for chemo kids (in the miscellaneous area)

teen cancer care issues (treatment at pediatric/adult centers, clinical trials)

teens

teeth

ten commandments of e-mail

thyroid, late effect to

tooth decay, proper eating to prevent

Tooth Fairy Project (levels of radiation in baby teeth)

TPMT (and 6MP)

translocation (ALL)

treatment for childhood cancers

treatments, new, and new drugs

trisomy (ALL)

U

V

videos relevant to childhood cancer

vincristine

W

WBC, white blood counts

web pages, personal, of cancer kids

web sites (links to external)

what cancer parents do not want you to say to them

what you can do to help a cancer family

wigs

Wilms tumor

wishes

work issues (family leave - FMLA) - see the articles in the Candlelighters quarterly journals

X

xerostomia

Y

young adult issues - some resources on the teen cancer page

youth issues, resources

Z

Zinecard® (dexrazoxane)

zofran

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