Resources and information for parents of children with cancer . . . by parents of children with cancer.

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Resources: Support and Advocacy Organizations

Important support organizations (non-profits) for childhood cancer are listed below; the comprehensive organizations are listed first, followed by ones for specific cancers or type of support.

Here is another list of childhood cancer organizations that I keep: Childhood Cancer Interest Groups. Many of these are small or geographic-area specific, but each organization that helps childhood cancer families or awareness for childhood cancer is important.

Alex's Lemonade Stand Foundation (ALSF)

www.alexslemonade.org/

ALSF is a national fundraising movement, ALSF is now a national fundraising movement, raising money (millions) and funding over 800 research projects. ALSF provides free resources for families affected by childhood cancer, including the Travel for Care and SuperSibs! programs. Website includes childhood cancer facts.

National Children's Cancer Society (NCCS)

www.thenccs.org

Emergency and travel financial assistance, scholarships, advocacy, information and support during and after treatment, and publications.

CureSearch

CureSearch

CureSearch raises funds for childhood cancer research as well as awareness. The web site has information on childhood cancer and its treatment.

American Childhood Cancer Foundation (formerly Candlelighters)

www.acco.org

Founded in 1970, the ACCO promotes advocacy, awareness, and resources for childhood cancer patients and their families.

Alliance for Childhood Cancer

www.allianceforchildhoodcancer.org

A forum of national patient advocacy groups and medical and scientific organizations that works collaboratively to advance research and policies to prevent cancer, and improve public education, and the diagnosis, treatment, supportive care and survivorship of children and adolescents with cancer.

Coalition Against Childhood Cancer (CAC2)

cac2.org

Awareness, advocacy, family resources, and research.

Childhood Cancer Canada Foundation

www.childhoodcancer.ca

Help for families and schools of childhood cancer patients, research funding, awareness, scholarships.

Starlight Starbright

www.starlight.org

Starlight Starbright helps seriously ill children and their families cope with their pain, fear and isolation through entertainment, education and family activities. Not cancer-specific.

Chai Lifeline

www.chailifeline.org

Chai Lifeline believes that seriously ill children (including children with cancer) need and deserve as happy and normal a childhood as possible. Their programs include: Camp Simcha, professional case management, learning programs, family retreats, insurance support service, wish granting, sibling support, and community services.

Friends of Scott

www.friendsofscott.org

Friends of Scott (San Diego, CA) provides emotional and financial support for young people with cancer and their families with face-to-face groups, a prom and other special events, scholarships, and a gas and grocery fund.

St. Baldricks Foundation

www.stbaldricks.org

St. Baldricks is the largest private (non-government) funder of childhood cancer research grants. Events for fundraising are head shavings.

The Children's Cause (CCCA)

www.childrenscause.org

Children's Cause Cancer Advocacy – "The Voice of Children with Cancer". CCCA works to achieve access to less toxic and more effective pediatric cancer therapies; to expand resources for research and specialized care; and to address the unique needs and challenges of childhood cancer survivors and their families.

People Against Childhood Cancer (PAC2)

curechildhoodcancer.ning.com

An advocacy community on a mission to raise awareness of childhood cancer.

General Disclaimer

These pages are intended for informational purposes only and are not intended to render medical advice. The information provided on Ped Onc Resource Center should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care. If you suspect your child has a health problem, you should consult your health care provider.

© copyright 1998-2018 by Patty Feist

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