Resources and information for parents of children with cancer . . . by parents of children with cancer.

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ACOR Online Support Groups

ACOR listserves – email support lists – were very active in the 1990s through about 2005. In 2018, there are so many social media sites that email-based groups are not as popular. But several of the ACOr listserves are still very active, and if you join and need support, members will post with help.

If you are not familiar with listserves:

Not very active: ACOR list: Ped-onc
Parents of children on/off treatment for all types of cancers

Ped-onc was the first ACOR list for parents, family, and friends of children with childhood cancer. Ped-onc was formed in January 1997. The children have all types of cancer: leukemia, neuroblastoma, brain tumors, rhabdomyosarcoma, etc. Many of the original members are still subscribed to help newly diagnosed families.

Historically, ped-onc is the parent pediatric group on ACOR, since it was the first and the groups for specific cancers (ALL, rhabdomyosarcoma, wilms, neuroblastoma) branched off from ped-onc.

Active: ACOR list: Ped-onc survivors
Parents of children who are off-treatment for childhood cancer

Active: ACOR list: ALL-kids-relapsed
Parents of children with relapsed ALL, Acute Lymphoblastic Leukemia

Active: ACOR list: N-blastoma
Parents of children with neuroblastoma

This is an unmoderated discussion list for patients, family, friends, researchers, and physicians, to discuss clinical and nonclinical issues and advances pertaining to neuroblastoma. This includes patient experiences, psychosocial issues, new research, clinical trials, alternative therapies and discussions of current treatment practices.

(?) ACOR list: Medullo-pnet
Parents/caregivers/doctors discuss the brain cancers, medulloblastoma and PNET.

Active: ACOR list: Rhabdo-kids
Parents/caregivers of children with rhabdomyosarcoma

Active: ACOR list: Wilms-kids
Parents/caregivers of children with Wilms tumor

General Disclaimer

These pages are intended for informational purposes only and are not intended to render medical advice. The information provided on Ped Onc Resource Center should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care. If you suspect your child has a health problem, you should consult your health care provider.

© copyright 1998-2018 by Patty Feist

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