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ACOR Online Support Groups
ACOR listserves – email support lists – were very active in the 1990s through about 2005. In 2018, there are so many social media sites that email-based groups are not as popular. But several of the ACOr listserves are still very active, and if you join and need support, members will post with help.
If you are not familiar with listserves:
- What to expect when you join a listserve
- Privacy issues
- Definitions and Courtesies explanations of some of the slang used in lists and a little about list courtesies
Not very active: ACOR list: Ped-onc
Parents of children on/off treatment for all types of cancers
Ped-onc was the first ACOR list for parents, family, and friends of children with childhood cancer. Ped-onc was formed in January 1997. The children have all types of cancer: leukemia, neuroblastoma, brain tumors, rhabdomyosarcoma, etc. Many of the original members are still subscribed to help newly diagnosed families.
Historically, ped-onc is the parent pediatric group on ACOR, since it was the first and the groups for specific cancers (ALL, rhabdomyosarcoma, wilms, neuroblastoma) branched off from ped-onc.
Active: ACOR list: Ped-onc survivors
Parents of children who are off-treatment for childhood cancer
The ped-onc-survivors listserve discusses all aspects of survivorship.This discussion group provides an opportunity for parents and family members of childhood/adolescent cancer survivors to share ideas, information and support.
Active: ACOR list: ALL-kids-relapsed
Parents of children with relapsed ALL, Acute Lymphoblastic Leukemia
This group is for parents, friends, and caregivers to children who have relapsed with ALL.
Not very active: ACOR list: infant-ALL
Parents of children with Infant ALL
This group is for parents, adult friends, and adult caregivers to infants (diagnosed at age up to 1 year) with acute lymphocytic leukemia. This includes parents' experiences, psychosocial issues, new research, clinical trials, and discussions of current treatment practices.
Not very active: ACOR list: ALCL-kids
Parents of children with ALCL, Anaplastic Large Cell Leukemia
ALCL is a rare, aggressive form of leukemia that is usually typed as a non-Hodgkins lymphoma.
Active: ACOR list: N-blastoma
Parents of children with neuroblastoma
This is an unmoderated discussion list for patients, family, friends, researchers, and physicians, to discuss clinical and nonclinical issues and advances pertaining to neuroblastoma. This includes patient experiences, psychosocial issues, new research, clinical trials, alternative therapies and discussions of current treatment practices.
(?) ACOR list: Medullo-pnet
Parents/caregivers/doctors discuss the brain cancers, medulloblastoma and PNET.
Communicate with parents, patients, relatives and doctors through e-mail on the subject of Medulloblastoma and PNET brain cancers. Although the list is primarily a medulloblastoma list, any primary brain tumour will not be turned away. Some other representative cancers include: ependymoblastoma, pineoblastoma, spongioblastoma, and other types of childhood primary brain and spinal tumours.
Active: ACOR list: Rhabdo-kids
Parents/caregivers of children with rhabdomyosarcoma
Active: ACOR list: Wilms-kids
Parents/caregivers of children with Wilms tumor
These pages are intended for informational purposes only and are not intended to render medical advice. The information provided on Ped Onc Resource Center should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care. If you suspect your child has a health problem, you should consult your health care provider.
© copyright 1998-2018 by Patty Feist