Resources and information for parents of children with cancer . . . by parents of children with cancer.

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About this site

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General

I created the Ped-Onc Resource Center Website in 1998, soon after my son was diagnosed with acute lymphoblastic leukemia. I was inspired to author the site by my participation in the ACOR childhood cancer discussion lists. I wanted to learn about the other types of childhood cancers that parents were talking about, and I wanted to have references to important information at all of our fingertips.

I am not affiliated with any organization, and all external links given throughout the site are for reference purposes only.

This Website cannot keep up with current treatments for childhood cancers, both because the author is not a medical professional, and because treatments keep changing. I strongly recommend parents to join one of the ACOR childhood cancer support lists to learn the best options for their child's treatment.

Funding

Since this website went online in 1998, I have been the sole financer. My time is donated and any costs are financed by me. The site is hosted free of charge by ACOR.

Advertising

Advertising not accepted by this Pediatric Oncology Resource Center Website. The Website will not display advertising of any sort, including banners from any other sites. Links to sites that are sell items (e.g., books, services such as air ambulances, medical items or drugs) are provided for convenience only. References to specific providers or drugs or any other resource do not reflect an endorsement of the services rendered.

Medical Information

These pages were not written by medical professionals. The medical information on this site is gleaned from reknowned online resources, text books, journal articles, and childhood cancer experts (parents or professionals). When appropriate, the sources are referenced. I am not a medical professional, although I have a strong scientific background. I try my best to write and maintain accurate information. My own qualifications are these: Parent of an adult who had acute lymphoblastic leukemia as a teen; retired Lab Coordinator for Organic Chemistry at CU Boulder; M.S. in Biochemistry, CU Boulder; and, perhaps I should include, computer addict and obsessed web surfer.

On some pages, I have included comments from parents of children with cancer, parents from all walks of life who have learned a lot about medical practices, and about life with a cancer child. I include these comments with the authors' permissions; I changed the names to protect privacy.

These writings are never to be substituted for personal consultations with your doctors.

Pages originally launched: 1/98

(First) major overhaul: 1/99

Still updating: 3/03

Major overhaul: 5-8/05

Time-consuming total site link check: 2011

Personal notes

9/05: To any techies out there, the summer of '05 overhaul came about for several reasons. I had trouble finding specific facts that I knew existed on my own web site, and realized that the 6-year old site needed a good reorganization. My son showed me some web pages that were done using CSS rather than tables and I was hooked. I got a large tome on CSS and began reading it wherever I went, and kept practicing. Finally, on Sept 1, 2005, I uploaded the re-vamped site to ACOR. Note that I kept every single link the same as it was before, so that people that link to my site will not have broken links.

As a side note, I find that maintaining a site that consists mostly of links is really a pain in the neck these days. Sometimes I wonder if this ped-onc site is necessary in this day of Google searches. My new goal is to focus on adding new content, and to keep new links to a minimum. (But then again, I'm addicted to making lists.)

4/11: I will say once again, it is extremely difficult to keep up with the url changes of external websites. At least a third of the links from 2005 no longer work (and some very information has been lost).

I'd like to thank ACOR for hosting this ped-onc site with no fees, no strings attached. And the late Steve Dunn for showing us how to build patient-generated web pages. Steve set the standard. He is sorely missed.

Patty "Look Ma, no tables!" Feist
www.pfeist.net and www.all-kids.org

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General Disclaimer

These pages are intended for informational purposes only and are not intended to render medical advice. The information provided on Ped Onc Resource Center should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care. If you suspect your child has a health problem, you should consult your health care provider.

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